My Voice

My open journal of my thoughts, ideas, struggles and triumphs in dealing with chronic migraine disease and chronic pain.

I Have to Honor Your Pain and You Have to Honor Mine

I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man.  Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes […]

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Migraine Patient Input for ICER Report – My Submission

Patient Input

Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to […]

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Can We Talk About Health Care For a Minute?

Open Enrollment

Can we talk about health care for a minute? I know, there’s been so much political discussion about it that it is so hard to figure out what’s going on. I’m not going to go into any of that because it’s irrelevant. Why? Because while the new Administration and members […]

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Embody Empathy This Pain Awareness Month

Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart.   The mother with a screaming kid in the grocery store.   The woman who parked in the handicapped space, but walked […]

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Why Being “Disabled” is a Full-Time Job

Disability Job Application

*************************SEEKING APPLICANTS************************* Job Title Chief Medical Officer of Personal Health Affairs (AKA Social Security Disability Beneficiary) Job Description Full-time position, flexible hours. Prerequisite: Ideal candidate would have a background in all of the following areas: analytics, accounting, patient advocacy, medical billing, insurance underwriting, legalese, pharmacology, healthcare administration, Social Security Disability, […]

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Migraine Takes. But It Also Gives Sometimes.

Migraine Takes

My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of […]

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