Headache on the Hill

I Have to Honor Your Pain and You Have to Honor Mine

December 11, 2017 / 0 Comments

I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man. Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes through, yet we found so many similarities. In the end all headache disease communities need to unite and support each other. A phrase that we both connect with is: I have to honor your pain and you have to honor mine. It’s that simple. It’s not a contest and we should always create a judgment free space! If you don’t experience cluster headaches or have been newly diagnosed, this is a great guide to understanding this disease. You can buy Ashley’s book on Amazon. Follow her on Facebook @Ashley S. Hattle – Author, Writer & Photographer. Ashley also hosts a…

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Photo Fridays- Advocates in Action

February 17, 2017 / 0 Comments

Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were caregivers and one a headache specialist. I have to boast about my friend Monica who had asked me months prior if she could go with me to Headache on the Hill.

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Why I’ve Come to Capitol Hill

February 15, 2017 / 0 Comments

Yesterday, I attended the 10th Annual Headache on the Hill. Organized by the Alliance for Headache Disorders Advocacy (http://allianceforheadacheadvocacy.org/headache-on-the-hill), over 100 patients, doctors and caregivers descended upon Capitol Hill to lobby for migraine research. We met with the offices of Senators and Congressman throughout the day to show how incredibly underfunded this disease is compared to the burden it places on its constituents and the economy. While some meetings only lasted 10 minutes or less, over 150 representatives were visited. I found that sharing personal stories helped to connect our audience to our disease. Sometimes it’s not always efficient to share your story as we are only one of dozens of appointments held in each office that day. We are encouraged to write our story and leave it with the staff member or representative we met with. I thought I would share my letter with you. As an advocate and…

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Photo Friday-Headache on the Hill

February 10, 2017 / 0 Comments

This picture was taken last year at Headache on the Hill, an annual lobbying event on Capitol Hill for migraine research. This coming Monday and Tuesday will be the 10th year advocates, patients, caregivers and headache specialists will descend upon the Hill to make sure our voice is heard.

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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