Travel

Photo Friday – Past 5 Weeks of Travel

July 14, 2017 / 2 Comments

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was: If there’s something really important to me, I prepare. I rest. I find the strength from somewhere to push through. But I pay for it. I have a hard time saying no, but I’ve been better at picking and prioritizing what’s important. If it means that much to me, I sacrifice my health. Is that smart? No. But I want to live, not just survive. It’s worth it to me. I realize that not everyone can travel, whether it’s for a conference or even a family vacation. I won’t pretend that my health has been great this whole time. I’ve had my…

Keep Reading...

Migraine Takes. But It Also Gives Sometimes.

July 12, 2017 / 0 Comments

My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of the future they had envisioned. Lost with what to do next. I got messages from many who were preparing to enter the hospital, full of questions and anxiety over the unknown. Upon hearing of a suicide in the cluster community, I felt utter despair for the family and a sense my own powerlessness. Migraine takes. I also saw people connect in different ways in the name of migraine awareness. My Facebook feed was inundated with people (and dogs) wearing #shadesformigraine or #haturdayforheadaches. I watched the brightest minds in headache medicine present their research, making me hopeful for the future. I…

Keep Reading...

Photo Friday- Painsomnia and Writing

May 5, 2017 / 0 Comments

I spent a large portion of March traveling. I found myself in many different hotels. I had trouble sleeping. I was exhausted, but stayed up late too many nights, writing to keep my mind off the pain. Late night is actually when I feel most creative. The street lights from Vermont Ave off of Thomas Circle had this amazing glow. It gave me a great reprieve from the harsh lights of conference rooms. Setting the perfect ambiance to sort all of my jumbled thoughts onto paper. Painsomnia is a perfect term to describe why I’m in pain and can’t sleep. I find solace in creating. It can help take my mind off the pain. It can also create bad sleeping patterns. Now that I’m home, I’m working on being more consistent with sleep. It’s probably one of my biggest areas for improvement.

Keep Reading...

Advocate on the Loose!

April 5, 2017 / 0 Comments

I’m on a plane home to LA reflecting on the last three weeks I spent on the east coast. Several opportunities came my way and of course it all happened at the same time! I am grateful I was asked to be part of events focused on community building, advocacy, education and collaboration.

Keep Reading...
Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

Archives